Virtual Mentor. January 2005, Volume 7, Number 1.
Case 2.2: Disclosure and Patient Information—Mr. Douglas's Angiogram Gets a Second Look
Opinion 8.12, "Patient Information" notes that, "Patients have a right to know their past and present medical status and to be free of any mistaken beliefs concerning their conditions." It is often difficult for physicians to satisfy the ethical duty to inform patients when a medical intervention has produced unexpected outcomes as a result of poor judgment, human error, or unknown causes. Disclosure can also be difficult when physicians or other medical practitioners have misinterpreted or misreported diagnostic test results. As Opinion 8.12, "Patient Information," makes clear, failure to disclose any such problems undermines the ethical responsibility to respect patient autonomy.
The obligation to uncover and disclose information regarding an unexpected harm or an inaccurate diagnosis arises from physicians' responsibility to act as patient advocates and to promote the patient's best interests, regardless of competing personal interests.
Some contend that the doctrine of "therapeutic privilege" permits a physician to withhold information that, if disclosed, could cause psychological distress or could undermine trust and lead the patient to rash decisions that would result in even greater negative effects. In the rare instances where this may be a concern, the physician should involve appropriate members of the patient's family, or other advocates, and consult a disinterested party, such as a trusted colleague or member of the ethics committee. Therapeutic privilege should not be invoked (or more accurately, hidden behind) merely as a means to avoid disclosing a diagnostic or medical error or an unexpected harm.
Communication about diagnostic or medical errors or unexpected harms should be made with tact, including an expression of concern and regret. Opinion 8.121, "Ethical Responsibility to Study and Prevent Error and Harm," explains how physicians might express their concern over unexpected harms to patients; "An expression of concern need not be an admission of responsibility. When patient harm has been caused by an error, physicians should offer a general explanation regarding the nature of the error and the measures being taken to prevent similar occurrences in the future." Many times, this explanation will preserve trust and will allow continuity of care with the same health care team. Such communication is most important when decisions need to be made promptly in response to the harm that has occurred. However, if the disclosure injures the patient's trust in the physician so severely that the patient prefers to obtain subsequent care elsewhere, the physician has a responsibility to assist the patient in obtaining continuing care.
If a physician who is responsible for an error or harm is unwilling or unable to acknowledge his or her responsibility to the patient, a neutral party should communicate the information to the patient. Alternately, a health care professional may discover an error or harm that a patient experienced under someone else's care. It is clear that even if a physician is not responsible for the harm, that physician still has the ethical obligation to be honest and forthcoming with information pertaining to the patient.
The people and events in this case are fictional. Resemblance to real events or to names of people, living or dead, is entirely coincidental. The viewpoints expressed on this site are those of the authors and do not necessarily reflect the views and policies of the AMA.
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