Search Results Search Sort by RelevanceMost Recent State of the Art and Science Jan 2021 “Prevention” and Human Gene Editing Governance Eric T. Juengst, PhD The Holocaust and the racial hygiene doctrine that helped rationalize it still overshadow contemporary debates about using gene editing for disease prevention. AMA J Ethics. 2021;23(1):E49-54. doi: 10.1001/amajethics.2021.49. State of the Art and Science Nov 2017 How Should Organizations Promote Equitable Distribution of Benefits from Technological Innovation in Health Care? Satish Nambisan, PhD and Priya Nambisan, PhD Fair distribution demands new strategies for engaging patients in co-creation. AMA J Ethics. 2017;19(11):1106-1115. doi: 10.1001/journalofethics.2017.19.11.stas1-1711. State of the Art and Science Nov 2017 Why Aren’t Our Digital Solutions Working for Everyone? Brian Van Winkle, MBA, Neil Carpenter, MBA, and Mauro Moscucci, MD, MBA To fairly distribute the benefits of digital technologies, clinicians will need to be incentivized to adopt technologies that target the underserved. AMA J Ethics. 2017;19(11):1116-1124. doi: 10.1001/journalofethics.2017.19.11.stas2-1711. Policy Forum Mar 2016 Shedding Privacy Along with our Genetic Material: What Constitutes Adequate Legal Protection against Surreptitious Genetic Testing? Nicolle K. Strand, JD, MBioethics Law doesn’t always adequately address unauthorized uses of individuals’ DNA. Ethics can help establish legal privacy protections that work. AMA J Ethics. 2016;18(3):264-271. doi: 10.1001/journalofethics.2016.18.3.pfor2-1603. Medicine and Society Oct 2019 How Should Decision Aids Be Used During Counseling to Help Patients Who Are “Genetically at Risk”? Natalie Evans, PhD, Suzanne Metselaar, PhD, Carla van El, PhD, Nina Hallowell, DPhil, MA, and Guy Widdershoven, PhD Prognostic uncertainty about risk creates demand for ongoing communication and facilitated reflection about goals and values. AMA J Ethics. 2019;21(10):E865-872. doi: 10.1001/amajethics.2019.865. State of the Art and Science Apr 2016 Keeping the Backdoor to Eugenics Ajar?: Disability and the Future of Prenatal Screening Gareth M. Thomas, PhD and Barbara Katz Rothman, PhD Noninvasive prenatal testing arguably constitutes a form of eugenics in a social context in which certain reproductive outcomes are not valued. AMA J Ethics. 2016;18(4):406-415. doi: 10.1001/journalofethics.2016.18.4.stas1-1604. Viewpoint Sep 2016 The Limits of Informed Consent for an Overwhelmed Patient: Clinicians’ Role in Protecting Patients and Preventing Overwhelm Johan Bester, MBChB, MPhil, Cristie M. Cole, JD, and Eric Kodish, MD Protecting patients rather than informed consent should be the goal when the complexity of information overwhelms patients’ decision-making capacity. AMA J Ethics. 2016;18(9):869-886. doi: 10.1001/journalofethics.2016.18.9.peer2-1609. Case and Commentary Jan 2006 Presymptomatic Genetic Testing for ALS Leo McCluskey, MD, MBe Virtual Mentor. 2006;8(1):16-19. doi: 10.1001/virtualmentor.2006.8.1.ccas2-0601. Case and Commentary Feb 2005 Quality of Life and Prenatal Decisions, Commentary 1 Ludger Schols, MD Virtual Mentor. 2005;7(2):136-140. doi: 10.1001/virtualmentor.2005.7.2.ccas1-0502. Case and Commentary Feb 2005 Quality of Life and Prenatal Decisions, Commentary 2 Georg Marckmann, MD Virtual Mentor. 2005;7(2):136-140. doi: 10.1001/virtualmentor.2005.7.2.ccas1-0502. Pagination Current page 1 Page 2 Page 3 Page 4 Page 5 Page 6 Next page Next › Last page Last »
State of the Art and Science Jan 2021 “Prevention” and Human Gene Editing Governance Eric T. Juengst, PhD The Holocaust and the racial hygiene doctrine that helped rationalize it still overshadow contemporary debates about using gene editing for disease prevention. AMA J Ethics. 2021;23(1):E49-54. doi: 10.1001/amajethics.2021.49.
State of the Art and Science Nov 2017 How Should Organizations Promote Equitable Distribution of Benefits from Technological Innovation in Health Care? Satish Nambisan, PhD and Priya Nambisan, PhD Fair distribution demands new strategies for engaging patients in co-creation. AMA J Ethics. 2017;19(11):1106-1115. doi: 10.1001/journalofethics.2017.19.11.stas1-1711.
State of the Art and Science Nov 2017 Why Aren’t Our Digital Solutions Working for Everyone? Brian Van Winkle, MBA, Neil Carpenter, MBA, and Mauro Moscucci, MD, MBA To fairly distribute the benefits of digital technologies, clinicians will need to be incentivized to adopt technologies that target the underserved. AMA J Ethics. 2017;19(11):1116-1124. doi: 10.1001/journalofethics.2017.19.11.stas2-1711.
Policy Forum Mar 2016 Shedding Privacy Along with our Genetic Material: What Constitutes Adequate Legal Protection against Surreptitious Genetic Testing? Nicolle K. Strand, JD, MBioethics Law doesn’t always adequately address unauthorized uses of individuals’ DNA. Ethics can help establish legal privacy protections that work. AMA J Ethics. 2016;18(3):264-271. doi: 10.1001/journalofethics.2016.18.3.pfor2-1603.
Medicine and Society Oct 2019 How Should Decision Aids Be Used During Counseling to Help Patients Who Are “Genetically at Risk”? Natalie Evans, PhD, Suzanne Metselaar, PhD, Carla van El, PhD, Nina Hallowell, DPhil, MA, and Guy Widdershoven, PhD Prognostic uncertainty about risk creates demand for ongoing communication and facilitated reflection about goals and values. AMA J Ethics. 2019;21(10):E865-872. doi: 10.1001/amajethics.2019.865.
State of the Art and Science Apr 2016 Keeping the Backdoor to Eugenics Ajar?: Disability and the Future of Prenatal Screening Gareth M. Thomas, PhD and Barbara Katz Rothman, PhD Noninvasive prenatal testing arguably constitutes a form of eugenics in a social context in which certain reproductive outcomes are not valued. AMA J Ethics. 2016;18(4):406-415. doi: 10.1001/journalofethics.2016.18.4.stas1-1604.
Viewpoint Sep 2016 The Limits of Informed Consent for an Overwhelmed Patient: Clinicians’ Role in Protecting Patients and Preventing Overwhelm Johan Bester, MBChB, MPhil, Cristie M. Cole, JD, and Eric Kodish, MD Protecting patients rather than informed consent should be the goal when the complexity of information overwhelms patients’ decision-making capacity. AMA J Ethics. 2016;18(9):869-886. doi: 10.1001/journalofethics.2016.18.9.peer2-1609.
Case and Commentary Jan 2006 Presymptomatic Genetic Testing for ALS Leo McCluskey, MD, MBe Virtual Mentor. 2006;8(1):16-19. doi: 10.1001/virtualmentor.2006.8.1.ccas2-0601.
Case and Commentary Feb 2005 Quality of Life and Prenatal Decisions, Commentary 1 Ludger Schols, MD Virtual Mentor. 2005;7(2):136-140. doi: 10.1001/virtualmentor.2005.7.2.ccas1-0502.
Case and Commentary Feb 2005 Quality of Life and Prenatal Decisions, Commentary 2 Georg Marckmann, MD Virtual Mentor. 2005;7(2):136-140. doi: 10.1001/virtualmentor.2005.7.2.ccas1-0502.