Nat Mulkey, MD, Carl G. Streed Jr, MD, MPH, and Barbara M. Chubak, MD
Some clinicians cite absence of long-term data to justify not fully deferring surgery for children with DSD, and legal restrictions of early procedures are also at play.
AMA J Ethics. 2021;23(7):E550-556. doi:
10.1001/amajethics.2021.550.
Dr Nat Mulkey and Dr Carl G. Streed Jr join Ethics Talk to discuss their article coauthored with Dr Barbara M. Chubak, "A Call to Update Standard of Care for Children With Differences in Sex Development."
Financial relationships are common, and ethical questions rightly emerge about how conflicts of interest compromise investigators’ approaches to research.
AMA J Ethics. 2021;23(9):E685-691. doi:
10.1001/amajethics.2021.685.
Therapeutic misconception—a false belief that individuals will benefit from participating in research—can bias informed consent. Ethics consultants can help by engaging participants’ and researchers’ understandings of risks and benefits and by asking good questions about the influences of researchers’ enthusiasm.
AMA J Ethics. 2018;20(11):E1100-1106. doi:
10.1001/amajethics.2018.1100.
Haley Moulton, Benjamin Moulton, JD, MPH, Tim Lahey, MD, MMSc, and Glyn Elwyn, MD, PhD, MSc
Shared decision making in research informed consent conversations is complex due to diverse and potentially divergent interests of investigators and patient-subjects.
AMA J Ethics. 2020;22(5):E365-371. doi:
10.1001/amajethics.2020.365.
Drs Katrina Bramstedt and Ana Iltis discuss the development of QoL assessment tools to help patient-subjects considering reconstructive transplantation.