Large precision health initiatives like the National Institutes of Health’s All of Us campaign raise important ethical questions about consent, privacy, and inclusivity. This month on Ethics Talk, we explore with Dr Katie Johansen Taber and Ysabel Duron strategies for protecting participants and ensuring that diverse communities are represented.
Joel T. Wu, JD, MPH, MA and Jennifer B. McCormick, PhD, MPP
False health-related speech can cause harm, but it’s not restricted unless it’s obscene. Physicians are obliged not only to correct patients’ false beliefs, but to engage digital spaces in which false claims thrive.
AMA J Ethics. 2018;20(11):E1052-1058. doi:
10.1001/amajethics.2018.1052.
Government can regulate false speech and professional speech, which bans “gag laws” and compelled speech about laws to restrict abortion, for example. How should health professions share regulatory responsibility with government to prevent true speech about health information from being stifled?
AMA J Ethics. 2018;20(11):E1041-1048. doi:
10.1001/amajethics.2018.1041.
Grace Kim, Uriel Sanchez Molina, and Altaf Saadi, MD, MSHPM
Undocumented patients can be subject to discrimination, reporting, detention, or deportation in violation of the Health Insurance Portability and Accountability Act, so what goes in the record is critical.
AMA J Ethics. 2019;21(1):E8-16. doi:
10.1001/amajethics.2019.8.
Being undocumented is a risk factor for mental illness, and immigration status relates prominently to overall health. That’s enough to consider it protected health information under the Health Insurance Portability and Accountability Act Privacy Rule.
AMA J Ethics. 2019;21(1):E32-37. doi:
10.1001/amajethics.2019.32.
Undocumented patients are a vulnerable population, since they often lack access to health insurance and can be afraid to present for care. This month on Ethics Talk, we discuss challenges in caring for undocumented patients with Dr. Mark Kuczewski, Scott Schweikart, and Dr. Nancy Berlinger.