Being undocumented is a risk factor for mental illness, and immigration status relates prominently to overall health. That’s enough to consider it protected health information under the Health Insurance Portability and Accountability Act Privacy Rule.
AMA J Ethics. 2019;21(1):E32-37. doi:
10.1001/amajethics.2019.32.
An emerging medical ethics issue is whether to delay posting pathology reports to electronic health records (EHR) to allow clinicians time to follow up.
AMA J Ethics. 2016;18(8):826-832. doi:
10.1001/journalofethics.2016.18.8.pfor1-1608.
Research is often conducted without the knowledge or consent of those whose tissues are banked and poses possible harms to social groups if information about a few members is unscientifically applied to all.
Because maintaining strict confidentiality is often untenable, or even illegal, determining the extent of protections in the postmortem context ultimately entails a weighing of the various interests at stake.
Siddhartha Devarakonda, MD, Ramaswamy Govindan, MD, and Peter S. Hammerman, MD, PhD
While next-generation genome-sequencing technology has great potential to aid cancer research, ethical challenges concerning privacy and confidentiality and the ownership of inventions remain.