Holly K. Tabor, PhD and Aaron Goldenberg, PhD, MPH
Rare genetic disease research has something to teach precision medicine about addressing some patients’ limited access to treatment. Health disparities exacerbated by high costs and limited availability of drugs can, perhaps, be mitigated when patient activism accelerates drug development.
AMA J Ethics. 2018;20(9):E834-840. doi:
10.1001/amajethics.2018.834.
Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018;20(9):E849-856. doi:
10.1001/amajethics.2018.849.
This commentary on a case considers the ethical feasibility of palliative psychiatry in the care of patients with severe and enduring anorexia nervosa.
AMA J Ethics. 2023;25(9):E668-673. doi:
10.1001/amajethics.2023.668.
Jonathan Treem, MD, Joel Yager, MD, and Jennifer L. Gaudiani, MD, CEDS-S
Some individuals with severe and enduring anorexia nervosa experience dramatically degraded quality of life in the face of refractory illness and compulsory treatment.
AMA J Ethics. 2023;25(9):E703-709. doi:
10.1001/amajethics.2023.703.
Zareen Zaidi, MD, PhD, Daniele Ölveczky, MD, MS, Nicole A. Perez, PhD, Paolo C. Martin, PhD, Andres Fernandez, MD, MSEd, Philicia Duncan, MD, and Hannah L. Anderson, MBA
This article canvasses ways to help trainees cultivate discernment and action in response to inequity.
AMA J Ethics. 2024;26(1):E12-20. doi:
10.1001/amajethics.2024.12.
This article proposes which instructional design priorities should guide development of inclusive, accessible online curricula and learning experiences.
AMA J Ethics. 2024;26(1):E26-35. doi:
10.1001/amajethics.2024.26.
Whitney V. Cabey, MD, MSHP, MA, Nicolle K. Strand, JD, MBE, MPH, and Erin Marshall, MSS, LSW
An emerging and important goal of health professions training is to develop a workforce equipped to address structural determinants of patients’ health.
AMA J Ethics. 2024;26(1):E48-53. doi:
10.1001/amajethics.2024.48.
A judicious approach to autism would be to replace a “disability” or “illness” paradigm with a “diversity” perspective that takes into account both strengths and weaknesses and the idea that variation can be positive in and of itself.
AMA J Ethics. 2015;17(4):348-352. doi:
10.1001/journalofethics.2015.17.4.msoc1-1504.
In treating children with autism, physicians should reframe the common dynamic in which the family wants medication that the doctor is withholding to focus instead on the family’s and physician’s share goal—the patient’s well-being.
AMA J Ethics. 2015;17(4):299-304. doi:
10.1001/journalofethics.2015.17.4.ecas1-1504.
Dr Whitney V. Cabey joins Ethics Talk to discuss her article, coauthored with Nicolle K. Strand and Erin Marshall: “What Might It Mean to Embrace Emancipatory Pedagogy in Medical Education?”