AMA Journal of Ethics. July 2017
This month in Journal of Ethics
Quality of Life in Dementia
Responding to dementia is a public health priority of the World Health Organization, as the number of people living with dementia is expected to triple by mid-century. Although dementia is a highly disabling neurocognitive disorder, and many people with dementia rely on surrogates’ involvement in decision making as the disease progresses, evidence also suggests that many dementia patients can reliably articulate their values, preferences, and desires. As a result, clinicians have obligations to ensure that people with dementia can maintain active, central roles in making decisions about their care and well-being. This issue of the AMA Journal of Ethics considers strategies for humanizing and supporting people with dementia so that they can continue to live lives consistent with their needs and preferences, even as the disease progresses.
Should Potential Risk of Chronic Traumatic Encephalopathy Be Discussed with Young Athletes? Kimberly Hornbeck, MD, Kevin Walter, MD, and Matthew Myrvik, PhD Young athletes benefit from participating in decision making about whether to participate in contact sports.
How Should Clinicians Counsel a Woman with a Strong Family History of Early-Onset Alzheimer’s Disease about Her Pregnancy? Commentary by Marianna V. Mapes, Barbara M. O’Brien, MD, and Louise P. King, MD, JD Pregnant women at high risk for heritable diseases need support and nondirective genetic counseling.
When Does Therapeutic Misconception Affect Surrogates’ or Subjects’ Decision Making about Whether to Participate in Dementia Research? Laura B. Dunn, MD, and Barton W. Palmer, PhD Research is needed on surrogates’ susceptibility to believing that clinical trials provide individual therapeutic benefit.
Transcending the Tragedy Discourse of Dementia Peter Reed, PhD, MPH, Jennifer Carson, PhD, and Zebbedia Gibb, PhD Authentic partnerships with people with dementia motivate full social participation and resist fatalism around experiences of illness.
August Iatrogenesis in Pediatrics
September Incarceration and Correctional Health Care
October Clean Water Access and the Roles of Clinicians
November Ethics of Collaborative Health Systems Design
December Health Care Ethics and Professionalism in the Era of Climate Change
January Clinicians’ Responsiveness to Violence
© 2017 American Medical Association. All Rights Reserved. ISSN 2376-6980