Search Results Search Sort by RelevanceMost Recent Viewpoint Sep 2016 The Limits of Informed Consent for an Overwhelmed Patient: Clinicians’ Role in Protecting Patients and Preventing Overwhelm Johan Bester, MBChB, MPhil, Cristie M. Cole, JD, and Eric Kodish, MD Protecting patients rather than informed consent should be the goal when the complexity of information overwhelms patients’ decision-making capacity. AMA J Ethics. 2016;18(9):869-886. doi: 10.1001/journalofethics.2016.18.9.peer2-1609. Policy Forum Sep 2009 Direct-to-Consumer Personal Genome Services: Need for More Oversight Emily E. Anderson, PhD, MPH There is a market for direct-to-consumer genetic testing and a need for better consumer information and more regulation of tests and testing laboratories. Virtual Mentor. 2009;11(9):701-708. doi: 10.1001/virtualmentor.2009.11.9.pfor1-0909. Policy Forum Sep 2009 Emerging Dilemmas in Newborn Screening Don B. Bailey, Jr, PhD, Debra Skinner, PhD, Myra I. Roche, MS, CGC, and Cynthia Powell, MD, MS Research questions must be answered to inform policy decisions about the hereditary diseases and conditions for which newborns should be tested. Virtual Mentor. 2009;11(9):709-713. doi: 10.1001/virtualmentor.2009.11.9.pfor2-0909.
Viewpoint Sep 2016 The Limits of Informed Consent for an Overwhelmed Patient: Clinicians’ Role in Protecting Patients and Preventing Overwhelm Johan Bester, MBChB, MPhil, Cristie M. Cole, JD, and Eric Kodish, MD Protecting patients rather than informed consent should be the goal when the complexity of information overwhelms patients’ decision-making capacity. AMA J Ethics. 2016;18(9):869-886. doi: 10.1001/journalofethics.2016.18.9.peer2-1609.
Policy Forum Sep 2009 Direct-to-Consumer Personal Genome Services: Need for More Oversight Emily E. Anderson, PhD, MPH There is a market for direct-to-consumer genetic testing and a need for better consumer information and more regulation of tests and testing laboratories. Virtual Mentor. 2009;11(9):701-708. doi: 10.1001/virtualmentor.2009.11.9.pfor1-0909.
Policy Forum Sep 2009 Emerging Dilemmas in Newborn Screening Don B. Bailey, Jr, PhD, Debra Skinner, PhD, Myra I. Roche, MS, CGC, and Cynthia Powell, MD, MS Research questions must be answered to inform policy decisions about the hereditary diseases and conditions for which newborns should be tested. Virtual Mentor. 2009;11(9):709-713. doi: 10.1001/virtualmentor.2009.11.9.pfor2-0909.