Dania Pagarkar joins Ethics Talk to discuss her article, coauthored with Drs Erin Harrop and Lisa Erlanger: “How Should We Approach Body Size Diversity in Clinical Trials?”
The neurodiversity movement challenges us to rethink autism through the lens of human diversity, valuing diversity in neurobiologic development as we would value it in gender, race, ethnicity, religion, or sexual orientation.
Although patients’ medical gender transition can be facilitated by counseling, as a matter of medical ethics, informed consent must be obtained for treatment.
AMA J Ethics. 2016;18(11):1079-1085. doi:
10.1001/journalofethics.2016.18.11.ecas2-1611.
Although now discredited, the idea that mothers’ behavior is responsible for autism lives on in the social pressure that mothers feel to save their autistic children, at a cost to both the self-blaming parents and people with autism.
AMA J Ethics. 2015;17(4):353-358. doi:
10.1001/journalofethics.2015.17.4.mhst1-1504.
Evaluation of an autism curriculum for pediatric residents yielded significant short-term gains in residents’ objective and self-assessed knowledge of autism spectrum disorder diagnosis and treatment.
AMA J Ethics. 2015;17(4):318-322. doi:
10.1001/journalofethics.2015.17.4.medu1-1504.
The harms of communicating autism risk can be avoided by helping families to understand risk and to distinguish between poor and good sources of scientific information, which should take families’ interests into account.
AMA J Ethics. 2015;17(4):323-327. doi:
10.1001/journalofethics.2015.17.4.nlit1-1504.