Large precision health initiatives like the National Institutes of Health’s All of Us campaign raise important ethical questions about consent, privacy, and inclusivity. This month on Ethics Talk, we explore with Dr Katie Johansen Taber and Ysabel Duron strategies for protecting participants and ensuring that diverse communities are represented.
Divya Yerramilli, MD, MBE, Alexandra Charrow, MD, MBE, and Arthur Caplan, PhD
Physicians should be aware of the powerful impact celebrities’ cancer narratives can have on patients’ experiences of their illnesses and treatment decisions. Partnering with celebrities is one strategy for delivering evidence-based health information and messaging to the public.
AMA J Ethics. 2018;20(11):E1075-1081. doi:
10.1001/amajethics.2018.1075.
Grace Kim, Uriel Sanchez Molina, and Altaf Saadi, MD, MSHPM
Undocumented patients can be subject to discrimination, reporting, detention, or deportation in violation of the Health Insurance Portability and Accountability Act, so what goes in the record is critical.
AMA J Ethics. 2019;21(1):E8-16. doi:
10.1001/amajethics.2019.8.
Being undocumented is a risk factor for mental illness, and immigration status relates prominently to overall health. That’s enough to consider it protected health information under the Health Insurance Portability and Accountability Act Privacy Rule.
AMA J Ethics. 2019;21(1):E32-37. doi:
10.1001/amajethics.2019.32.
Undocumented patients are a vulnerable population, since they often lack access to health insurance and can be afraid to present for care. This month on Ethics Talk, we discuss challenges in caring for undocumented patients with Dr. Mark Kuczewski, Scott Schweikart, and Dr. Nancy Berlinger.
Patrick S. Phelan, Mary C. Politi, PhD, and Christopher J. Dy, MD, MPH
During immediate and long-term recovery periods, decisions must account for patients’ personal goals and possible clinical outcomes and should clarify what recovery means.
AMA J Ethics. 2020;22(5):E380-387. doi:
10.1001/amajethics.2020.380.
This article considers that benefits of using humor in clinical settings come with risks of diminishing therapeutic capacity in patient-clinician relationships.
AMA J Ethics. 2020;22(7):E576-582. doi:
10.1001/amajethics.2020.576.