Large precision health initiatives like the National Institutes of Health’s All of Us campaign raise important ethical questions about consent, privacy, and inclusivity. This month on Ethics Talk, we explore with Dr Katie Johansen Taber and Ysabel Duron strategies for protecting participants and ensuring that diverse communities are represented.
Michele C. Gornick, PhD, MA and Brian J. Zikmund-Fisher, PhD, MA
How information is provided can change a choice. Decision science helps reveal affective forecasting errors and can generate choices congruent with patients’ and families’ values.
AMA J Ethics. 2019;21(10):E906-912. doi:
10.1001/amajethics.2019.906.
A graphic memoir documents clinical and ethical disagreements and decision points throughout a paramedic team’s time with an incarcerated patient in labor.
AMA J Ethics. 2019;21(10):E902-903. doi:
10.1001/amajethics.2019.902.
Decision making in health care demands that we balance multiple considerations, like quality of life, statistics, and how different options could affect others. Dr Brian Zikmund-Fisher shares his own experience as a patient and explains how decision science can help us navigate ethically complex health decisions.
Should old folks who have lived their lives be allowed to place a huge economic burden on the young by using a disproportionate amount of limited Medicare resources for medical care?