Stephen T. Miller, MD and Rexann G. Pickering, PhD, CIP, RN
Investigators must determine whether patient consent forms for medical care include the provision that registries for patients with particular medical conditions may be made or electronic data searches may be performed.
CBP researchers are challenged to think strategically about ways to convey their accomplishments and educate their non-CBPR peers about the nature of their research, processes not required of traditional researchers.
Advance directives, substituted judgment, and the best-interest standard all have limitations that constrain their usefulness in making medical decisions for patients who cannot choose for themselves.
The practice of banking sperm from adolescents about to undergo chemotherapy is not universal, which lends support to the argument that parental consent be required for the intervention.