Julie E. Lucero, PhD, MPH and Yvette Roubideaux, MD, MPH
Concepts of “governance,” “trust,” and “culture” can help strengthen research partnerships, honor tribal sovereign authority, counter histories of opportunism, and recognize alternative ways of knowing.
AMA J Ethics. 2020;22(10):E882-887. doi:
10.1001/amajethics.2020.882.
Cyrus Ahalt, MPP, Rebecca Sudore, MD, Marielle Bolano, Lia Metzger, Anna M. Darby, MD, MPH, and Brie Williams, MD, MS
The teach-to-goal method should be used to assess comprehension of incarcerated patients and other vulnerable groups during the informed consent process.
AMA J Ethics. 2017;19(9):862-872. doi:
10.1001/journalofethics.2017.19.9.peer3-1709.
Specific advocate guidelines are needed for the protection of children in state custody who are potential research subjects in trials that would expose them to greater-than-minimal risk but also hold the prospect of direct benefit.