A mother of a prematurely born son reviews several quality-of-life research studies that highlight the disparity between self-reported quality of life and physician estimates of quality of life.
A bioethicist argues that children with Down syndrome should not be subjected to cosmetic surgery to change their appearance unless they are at the age and have the capacity to make the decision for themselves.
Physicians should go beyond basic medical diagnosis and treatment to offer support to families about the gamut of social and emotional issues that are involved with caring for a severely disabled child.
Mark T. Hughes, MD, MA and Bimal H. Ashar, MD, MBA
Physicians are urged to evaluate an asymptomatic patient's request for CT screening and use the opportunity to educate the patient and determine the course of action that is in the patient's best interest.