B. Rashmi Borah, Nicolle K. Strand, JD, MBioethics, and Kata L. Chillag, PhD
The Bioethics Commission’s recommendations to include research participants with impaired consent capacity provide an ethical foundation for neuroscience.
AMA J Ethics. 2016;18(12):1192-1198. doi:
10.1001/journalofethics.2016.18.12.nlit1-1612.
A survey suggests that there is broad consensus among physicians about the importance of honesty with patients, but there is variation in physicians' behavior in disclosing certain information to patients.
Instead of trying to reduce the number of people who have access to a patient's medical record by quarantining information, hospitals should explain the current meaning of confidentiality to patients as part of the informed consent process.
Review of an article that takes the position that the hospital/physician-employee relationship can work if it is built on the socially directed ideals both parties share.
By privileging traditional research methods in forms for research protocol approval, IRBs can unknowingly allow community partners to be harmed in CBPR. Changes to the language can help ensure appropriate sensitivity and community involvement.
A mother of a prematurely born son reviews several quality-of-life research studies that highlight the disparity between self-reported quality of life and physician estimates of quality of life.