Physicians should go beyond basic medical diagnosis and treatment to offer support to families about the gamut of social and emotional issues that are involved with caring for a severely disabled child.
Health care policy changes are needed to minimize the risk to physicians responding to public health emergencies and aid in their longer-term responsibility of protecting and promoting the nation's health.
Presymptomatic genetic testing for neurodegenerative diseases can help patients make effective treatment decisions, but the medical profession needs to ensure that the increasing use of the tests is done responsibly.