John Meyer joins Ethics Talk to discuss how “human-centered” design can help remove barriers to care and forge solidarity between patients and clinicians, and multidisciplinary artist Eve Payor talks about her projects with the Atlantic Center for the Arts and how soundscape ecology can help us understand effective sound design in health care settings.
Cynthia E. Schairer, PhD, Caryn Kseniya Rubanovich, MS, and Cinnamon S. Bloss, PhD
Questions about data privacy need to be addressed when research institutions negotiate with companies developing mobile health applications. Commercial terms of use and data sharing notifications should be reviewed before use in human subject research settings.
AMA J Ethics. 2018;20(9):E864-872. doi:
10.1001/amajethics.2018.864.
For patients to adopt personal health records, they must be convinced of the value the technology has for them. Framing that value in a way that actively engages patients as collaborators in their health care management will not only empower the individual but improve patient-clinician relationships overall.
Bias toward allopathic medicine in the research funding and publication of study results makes it difficult for physicians and others to find accurate data about the efficacy of non-Western, nonallopathic treatments.