Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018;20(9):E849-856. doi:
10.1001/amajethics.2018.849.
A much-anticipated attempt to rectify the many shortcomings in public health statutory law and regulations, the Turning Point Act resulted in sweeping overhauls of public health infrastructure and legislation in several states.
While the Model State Public Health Act does much to address inconsistent and outdated state legislation pertaining to infectious disease outbreaks and other public health emergencies, its current form has caused some concern about possible infringement of civil liberties.
There is a market for direct-to-consumer genetic testing and a need for better consumer information and more regulation of tests and testing laboratories.