Holly K. Tabor, PhD and Aaron Goldenberg, PhD, MPH
Rare genetic disease research has something to teach precision medicine about addressing some patients’ limited access to treatment. Health disparities exacerbated by high costs and limited availability of drugs can, perhaps, be mitigated when patient activism accelerates drug development.
AMA J Ethics. 2018;20(9):E834-840. doi:
10.1001/amajethics.2018.834.
Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018;20(9):E849-856. doi:
10.1001/amajethics.2018.849.
The meaning of “disability” has shifted with US public policy changes over time. People with disability are protected under civil rights law, and open questions remain about whether and when policy-level interventions and reasonable accommodations create equal opportunity.
AMA J Ethics. 2016;18(10):1025-1033. doi:
10.1001/journalofethics.2016.18.10.pfor2-1610.
This article highlights opinions in the Code that exemplify obligations to promote social justice and equity in health professions pedagogy and training.
AMA J Ethics. 2024;26(1):E68-71. doi:
10.1001/amajethics.2024.68.
Joelle I. Rosser, MD, MS, Orion X. Lavery, Rebecca C. Christofferson, PhD, MApSt, Juma Nasoro, Francis M. Mutuku, PhD, and A. Desiree LaBeaud, MD, MS
Organizations’ architecture and communities’ waste stream designs situate how well industrial hygiene practices support or undermine individuals’ and communities’ pathogenic vulnerability.
AMA J Ethics. 2024;26(2):E132-141. doi:
10.1001/amajethics.2024.132.