Large precision health initiatives like the National Institutes of Health’s All of Us campaign raise important ethical questions about consent, privacy, and inclusivity. This month on Ethics Talk, we explore with Dr Katie Johansen Taber and Ysabel Duron strategies for protecting participants and ensuring that diverse communities are represented.
In the 1910s, the American Medical Association fought quackery promoted in pamphlets for drugs and treatments for everything from teething to epilepsy.
AMA J Ethics. 2018;20(11):E1082-1093. doi:
10.1001/amajethics.2018.1082.
Therapeutic misconception—a false belief that individuals will benefit from participating in research—can bias informed consent. Ethics consultants can help by engaging participants’ and researchers’ understandings of risks and benefits and by asking good questions about the influences of researchers’ enthusiasm.
AMA J Ethics. 2018;20(11):E1100-1106. doi:
10.1001/amajethics.2018.1100.
Health care reform expanded health insurance to millions, but current community benefit policies must be used by organizations hoping to address social determinants.
AMA J Ethics. 2019;21(3):E248-258. doi:
10.1001/amajethics.2019.248.
Where people live and work influences how long and how well they live. Supporting community investments can diminish risk, improve outcomes, and reduce costs.
AMA J Ethics. 2019;21(3):E262-268. doi:
10.1001/amajethics.2019.262.
Nanoscale products pose ethical, legal, and policy challenges to governing the use of products that integrate multiple mechanisms of therapeutic action.
AMA J Ethics. 2019;21(4):E347-355. doi:
10.1001/amajethics.2019.347.