By failing to follow informed consent protocols and regulations, a researcher engaging in CBPR may inflict permanent harm on the participating community and chill future research among disadvantaged populations.
The differences between CBPR and traditional research have been enumerated, but how to overcome them is still up for discussion, collaboration with community members is advocated, and examples are given.
The revisions balance a growing understanding of gender identity disorders and societal views with the need to retain conditions that benefit from intervention and the removal of which would hamper patients’ ability to receive medical treatment.
Assigning community based on race suggests that phenotype reveals something consistent about biology that is equal in standing to factors like weight, dietary habits, smoking history, and whether or not you had rheumatic fever as a child.
Stephen T. Miller, MD and Rexann G. Pickering, PhD, CIP, RN
Investigators must determine whether patient consent forms for medical care include the provision that registries for patients with particular medical conditions may be made or electronic data searches may be performed.
CBP researchers are challenged to think strategically about ways to convey their accomplishments and educate their non-CBPR peers about the nature of their research, processes not required of traditional researchers.
Patricia D. Quigley, MD and Megan A. Moreno, MD, MSEd, MPH
Maintaining an adolescent’s confidentiality while answering his or her parents’ questions about their child’s change in mood and behavior can be challenging.
Loss of personal integrity, the emotional and psychological costs of “pronoun switching,” and actively managing one’s presentation can be time-consuming and exhausting.
Forced migration of Pacific Islanders raises ethical issues of health and health care disparities, which are examined in the case of Tuvaluan immigrants.
AMA J Ethics. 2017;19(12):1211-1221. doi:
10.1001/journalofethics.2017.19.12.imhl1-1712.