A look at current literature and work by a statewide initiative can motivate development of policies that help respond to unrepresented patients’ needs.
AMA J Ethics. 2019;21(7):E611-616. doi:
10.1001/amajethics.2019.611.
When patients are unable to express their wishes and do not have surrogates or advance directives, which and whose values should inform decision making for them? We discuss ethical complexities of caring for unrepresented patients.
Physicians should provide women considering abortion after Down syndrome screening with unbiased information and not attempt to influence their decision.
AMA J Ethics. 2016;18(4):359-364. doi:
10.1001/journalofethics.2016.18.4.ecas1-1604.
Denisse Rojas Marquez, MD, MPP and Hazel Lever, MD, MPH
“Very important persons” care contributes to multitiered, racially segregated health service delivery streams that influence clinicians’ conceptions of what patients deserve from them.
AMA J Ethics. 2023;25(1):E66-71. doi:
10.1001/amajethics.2023.66.
John Meyer joins Ethics Talk to discuss how “human-centered” design can help remove barriers to care and forge solidarity between patients and clinicians, and multidisciplinary artist Eve Payor talks about her projects with the Atlantic Center for the Arts and how soundscape ecology can help us understand effective sound design in health care settings.
Dr Lisa Lehmann joins Ethics Talk to discuss “grateful patient programs,” pressures clinicians face to fundraise on behalf of health care organizations for which they work, and whether “VIP” care really is better for patients.
Jing Li, PhD, Robert Tyler Braun, PhD, Sophia Kakarala, and Holly G. Prigerson, PhD
For dying patients and their loved ones to make informed decisions, physicians must share adequate information about prognoses, prospective benefits and harms of specific interventions, and costs.
AMA J Ethics. 2022;24(11):E1040-1048. doi:
10.1001/amajethics.2022.1040.