Physicians should demonstrate compassion when the parent of an ill child asks the physician for his or her personal opinion regarding the parents' choice to continue experimental treatment when the prognosis is not good.
Physicians who treat children with Down's syndrome should ensure that their parents fully understand the children's capabilities and long-term prognosis and counsel them on the appropriate actions to take regarding their children's care.
Physicians need to manage expectations and clearly explain the prognosis of ICU patients to their families, particularly when the outcome is a negative one.
Physicians should go beyond basic medical diagnosis and treatment to offer support to families about the gamut of social and emotional issues that are involved with caring for a severely disabled child.
Julie M.G. Rogers, PhD, C. Christopher Hook, MD, and Rachel D. Havyer, MD
The medical profession’s valuing of intellectual ability may inadvertently harm people with intellectual or cognitive disabilities who have a different notion of “the good life.”
AMA J Ethics. 2015;17(8):717-726. doi:
10.1001/journalofethics.2015.17.8.peer1-1508.
Disparities in children’s mental health care could be addressed through expansion of school-based programs via passage of the Mental Health in Schools Act.
AMA J Ethics. 2016;18(12):1218-1224. doi:
10.1001/journalofethics.2016.18.12.pfor1-1612.
This month, AMA Journal of Ethics theme editor Jacquelyn Nestor, a fifth-year MD/PhD student at Hofstra-Northwell School of Medicine, interviewed Allen Buchanan, PhD, about how we can safely explore cutting-edge biomedical enhancements.