The UDN seeks to advance diagnostic science and to facilitate accurate diagnoses of individual patient-participants’ “medical mysteries.”

Finding an accurate diagnosis can be a long and complex process.

Dr James Tabery joins Ethics Talk to discuss how US health research has shifted from social and environmental factors to genetics over the course of the mid-to-late 20th century.

Gianna Gordon joins Ethics Talk to discuss her article, coauthored with Lisa Kearns: “Is the UDN N-of-1 Enterprise Ethically Justifiable?”

A national consortium of clinicians and researchers hope to accurately diagnose patients with rare diseases.

Dr David A. Pearce joins Ethics Talk to discuss his article, coauthored with Dr Elena-Alexandra Tataru: “What Matters Ethically About How the UDN Has Changed Since Its Inception.”

A 3-panel comic illustrates an offer of data to pay for health care services.

The Holocaust and the racial hygiene doctrine that helped rationalize it still overshadow contemporary debates about using gene editing for disease prevention.

Clinically and ethically relevant questions are related to patient safety, therapeutic efficacy, equitable access, and global governance over humanity’s genetic legacy.

Dr Sean C. McConnell provides an introduction to gene editing, and Scott J. Schweikart discusses what prudent governance requires.