Sometimes, life-saving treatments have serious negative consequences. This month, AMA Journal of Ethics digital editor Amelia Thomson-DeVeaux discusses strategies for communicating about iatrogenic outcomes with Dr. Robert Nelson, a senior pediatric ethicist with the Food and Drug Administration, with a particular focus on how to enlist parents as allies in high-stress pediatric cases.
Although identical twin-to-twin skin grafting has resulted in excellent survival rates in burn patients, the nature and scope of ethical decision making in monozygotic sibling skin grafting needs further examination.
AMA J Ethics. 2018;20(6):537-545. doi:
10.1001/journalofethics.2018.20.6.cscm2-1806.
There is evidence that children who are unaware of their life-threatening diagnoses do not experience any less distress and anxiety than those who are told, and in some cases they may actually experience more.
When a seriously ill mature minor and his parent disagree about his receiving an experimental intervention, who should decide what treatment he will receive?