Not all cultural traditions have the same conception of personhood. In Confucianism, self-individuation takes place only through engagement with others in the context of one’s social roles and relationships.
Death’s legal definition must be responsive to advances in technology, and it must delineate between life and death. Knowing where to draw the line is difficult.
AMA J Ethics. 2020;22(12):E1055-1061. doi:
10.1001/amajethics.2020.1055.
Nat Mulkey, MD, Carl G. Streed Jr, MD, MPH, and Barbara M. Chubak, MD
Some clinicians cite absence of long-term data to justify not fully deferring surgery for children with DSD, and legal restrictions of early procedures are also at play.
AMA J Ethics. 2021;23(7):E550-556. doi:
10.1001/amajethics.2021.550.
Physicians should go beyond basic medical diagnosis and treatment to offer support to families about the gamut of social and emotional issues that are involved with caring for a severely disabled child.