International debate about human genome editing governance has undergone a paradigm shift and suggests that inclusive public deliberation is still important.
AMA J Ethics. 2019;21(12):E1065-1070. doi:
10.1001/amajethics.2019.1065.
Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018;20(9):E849-856. doi:
10.1001/amajethics.2018.849.
The Department of Health and Human Service's decision to include a religious exemption to its requirement that private health plans cover contraception without patient cost-sharing raises questions about whether such an exemption appropriately balances the needs, beliefs, rights, and obligations of all affected.
Wendy Foth, Carol Waudby, and Murray H. Brilliant, PhD
Certificates of confidentiality, issued by the Department of Health and Human Services, allow researchers to refuse to disclose identifying information about research participants in any civil, legal, or other government proceeding. This level of protection is said to promote enrollment in research studies.
Qualifying conscience protections for institutions with requirements that they minimize hardship caused to the patient would prevent religious institutions from acting as a choke point on the path to services.
If employees of religious institutions whose consciences conflict with those of their employers were to be granted legal protection for positive claims of conscience, the religious freedom of institutions within which they work would be gravely compromised.