Mary Anderlik Majumder, JD, PhD and Christi J. Guerrini, JD
Amendments to the Common Rule and Health Insurance Portability and Accountability Act (HIPAA) raise questions about broad consent and sale of health data.
AMA J Ethics. 2016;18(3):288-298. doi:
10.1001/journalofethics.2016.18.3.pfor5-1603.
Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018;20(9):E849-856. doi:
10.1001/amajethics.2018.849.
Cynthia E. Schairer, PhD, Caryn Kseniya Rubanovich, MS, and Cinnamon S. Bloss, PhD
Questions about data privacy need to be addressed when research institutions negotiate with companies developing mobile health applications. Commercial terms of use and data sharing notifications should be reviewed before use in human subject research settings.
AMA J Ethics. 2018;20(9):E864-872. doi:
10.1001/amajethics.2018.864.
Kelsey Mumford, Lin Fraser, EdD, and Gail Knudson, MD, MEd
While transgender health care has moved beyond “gender identity disorder” and “gender dysphoria” as mental illnesses, gender incongruence continues to be a source of oppression.
AMA J Ethics. 2023;25(6):E446-451. doi:
10.1001/amajethics.2023.446.
One major difficulty in collecting data on which to base injury prevention strategies is the lack of large epidemiologic studies and comprehensive injury surveillance.
The continuance of public and institutional support for medical research after the publicized deaths of human research participants in the 1950s contrasts sharply with the disciplining of institutions responsible for two such deaths in recent decades, which suggests that medical research participants are no longer receiving public recognition for their contributions to science.
AMA J Ethics. 2015;17(12):1166-1171. doi:
10.1001/journalofethics.2015.17.12.mhst1-1512.