When a child or family begins to stand out because of patterns in history or physical findings, physicians must determine whether to take a closer look at the situation.
On this episode of Ethics Talk, Editorial Fellow Dr C. Alessandra Colaianni describes the creation of this month’s issue on palliative surgery, and Dr Wynne Morrison explains how to explore palliative surgical goal formation with children and their guardians.
In treating children with autism, physicians should reframe the common dynamic in which the family wants medication that the doctor is withholding to focus instead on the family’s and physician’s share goal—the patient’s well-being.
AMA J Ethics. 2015;17(4):299-304. doi:
10.1001/journalofethics.2015.17.4.ecas1-1504.
Chris Feudtner, MD, PhD, MPH, David Munson, MD, and Wynne Morrison, MD
The way that we choose how to frame the conversation with parents about halting or continuing such therapy for their children who will not recover has special importance in medicine and in society.
Physicians should recognize that patients’ beliefs may cause them to have non-medical explanations for their illnesses and that shared explanations should be negotiated if treatment plans are to be successful.
Physicians should demonstrate compassion when the parent of an ill child asks the physician for his or her personal opinion regarding the parents' choice to continue experimental treatment when the prognosis is not good.
Physicians who treat children with Down's syndrome should ensure that their parents fully understand the children's capabilities and long-term prognosis and counsel them on the appropriate actions to take regarding their children's care.
Parents' ability to make medical decisions for their children can be limited by state law if it is determined that the child's best interest is not being met.