April R. Christensen, MD, Tara E. Cook, MD, and Robert M. Arnold, MD
Physicians who are uncomfortable with patients’ requests to participate in prayer should pause, listen respectfully, and reflect back their understanding of the request, regardless of whether they pray.
AMA J Ethics. 2018;20(7):E621-629. doi:
10.1001/amajethics.2018.621.
Educators discussing ethically challenging topics with students should try to cultivate open mindedness while illuminating potential negative consequences that their health practice beliefs—such as refusing to provide abortion care—can have for patients, particularly those with limited options.
AMA J Ethics. 2018;20(7):E637-642. doi:
10.1001/amajethics.2018.637.
AMA Journal of Ethics theme editor Abraar Karan, MD, and MPH candidate at the Harvard TH Chan School of Public Health, interviewed Agnes Binagwaho, MD, PhD, about practical challenges Rwanda overcame and ethical questions it faced while motivating better health outcomes for its people.
Kyle B. Brothers, MD, PhD and Esther E. Knapp, MD, MBE
Direct-to-consumer genetic testing requires that physicians share decision making with patients, not order unnecessary tests or interventions, and refer to genetic specialists when necessary.
AMA J Ethics. 2018;20(9):E812-818. doi:
10.1001/amajethics.2018.812.
Mandatory genetic testing of health care professionals could help structure health care organizations’ responses to a pandemic. Patients and more susceptible employees can benefit, and these benefits must be weighed against concerns about fairness, autonomy, genetic privacy, and potential loss of employment opportunities.
AMA J Ethics. 2018;20(9):E819-825. doi:
10.1001/amajethics.2018.819.
Clara C. Hildebrandt, MD and Jonathan M. Marron, MD, MPH
Gene editing with CRISPR/Cas9 raises concerns about equitable access to therapies that could limit research participation by minority group members. These concerns can be addressed through public education, transparency, and stakeholder partnerships.
AMA J Ethics. 2018;20(9):E826-833. doi:
10.1001/amajethics.2018.826.
Holly K. Tabor, PhD and Aaron Goldenberg, PhD, MPH
Rare genetic disease research has something to teach precision medicine about addressing some patients’ limited access to treatment. Health disparities exacerbated by high costs and limited availability of drugs can, perhaps, be mitigated when patient activism accelerates drug development.
AMA J Ethics. 2018;20(9):E834-840. doi:
10.1001/amajethics.2018.834.
Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018;20(9):E849-856. doi:
10.1001/amajethics.2018.849.
Dr Jane Lee joins Ethics Talk to discuss her article, coauthored with Drs Gabriel Robles and Latoya Small: “What Should Students Learn About the Importance of Cultural Brokering in Immigrant Communities?”