Large precision health initiatives like the National Institutes of Health’s All of Us campaign raise important ethical questions about consent, privacy, and inclusivity. This month on Ethics Talk, we explore with Dr Katie Johansen Taber and Ysabel Duron strategies for protecting participants and ensuring that diverse communities are represented.
Iris G. Insogna, MD, MBE and Elizabeth S. Ginsburg, MD
Although the World Health Organization defines infertility as a disease, insurance coverage gaps generate disparities in access to care and treatment, especially for tubal factor infertility and oncofertility.
AMA J Ethics. 2018;20(12):E1152-1159. doi:
10.1001/amajethics.2018.1152.
With a focus on health justice, literature review suggests possible relationships between HPV type and geography and demonstrates that insurance status matters.
AMA J Ethics. 2019;21(3):E269-272. doi:
10.1001/amajethics.2019.269.
A graphic memoir documents clinical and ethical disagreements and decision points throughout a paramedic team’s time with an incarcerated patient in labor.
AMA J Ethics. 2019;21(10):E902-903. doi:
10.1001/amajethics.2019.902.
This graphic storybook portrays an undocumented child in the United States who is denied fundamental human rights to health care, education, shelter, and food.
AMA J Ethics. 2019;21(1):E111-112. doi:
10.1001/amajethics.2019.111.
Hannah R. Sullivan and Scott J. Schweikart, JD, MBE
Legal questions regarding clinicians’ and technology manufacturers’ liability arise when algorithmic recommendations generated by the technology are hard to understand.
AMA J Ethics. 2019;21(2):E160-166. doi:
10.1001/amajethics.2019.160.