Stephen T. Miller, MD and Rexann G. Pickering, PhD, CIP, RN
Investigators must determine whether patient consent forms for medical care include the provision that registries for patients with particular medical conditions may be made or electronic data searches may be performed.
CBP researchers are challenged to think strategically about ways to convey their accomplishments and educate their non-CBPR peers about the nature of their research, processes not required of traditional researchers.
Physicians have an ethical responsibility to caregivers whose psychological distress is caused by their experience of the patient’s illness and treatment.
AMA J Ethics. 2017;19(5):493-500. doi:
10.1001/journalofethics.2017.19.5.msoc3-1705.
Anne-Marie Laberge, MD, PhD and Wylie Burke, MD, PhD
Physicians and counselors must address the importance of communicating genetic test results to family members in the pre-test counseling and informed-consent processes prior to testing.
New brain imaging suggests that asking patients to put themselves in their surrogates’ shoes when thinking about advance directives might lead to directives that better line up with what surrogates think they should decide.