Paula Tironi, JD, LLM and Monique M. Karaganis, MD
While parents often have legal authority to make decisions regarding pediatric palliative care, federal and state statutory and case laws, like CAPTA, impose significant restrictions on that authority.
Hydration at the end of life may be much less beneficial than generally assumed, but the emotional significance of nourishment to caregiving should not be underestimated.
The participatory decision-making model for patient-physician relationships is the best approach for addressing the individual family-related and social influences that stress that relationship.
Pairing medical students with chronically ill community volunteers for 2 years helps those students gain appreciation for the experience of illness, develop self-reflection and perspective-taking, and learn to communicate with people who may be quite unlike them.