Large precision health initiatives like the National Institutes of Health’s All of Us campaign raise important ethical questions about consent, privacy, and inclusivity. This month on Ethics Talk, we explore with Dr Katie Johansen Taber and Ysabel Duron strategies for protecting participants and ensuring that diverse communities are represented.
Medical students’ moral distress about end-of-life cases can be reduced through ethics consultation and ethics rounds, narrative reflection, and mentoring.
AMA J Ethics. 2017;19(6):585-594. doi:
10.1001/journalofethics.2017.19.6.stas1-1706.
The DSM-5 Task Force’s handling of the ethical controversy over the bereavement exclusion demonstrates the need for more inclusive deliberative processes.
AMA J Ethics. 2017;19(2):192-198. doi:
10.1001/journalofethics.2017.19.2.pfor2-1702.
When patients express overt racism, caregivers need to feel safe and supported. The scope of organizations’ responsibilities to make that happen needs to be clearly defined.
AMA J Ethics. 2019;21(6):E499-504. doi:
10.1001/amajethics.2019.499.
Ethical questions raised during “immersions” include scope of practice, continuity of care, and erosion of local health systems. This is a perspective of one volunteer in a related field.
AMA J Ethics. 2019;21(9):E815-822. doi:
10.1001/amajethics.2019.815.
Grace Kim, Uriel Sanchez Molina, and Altaf Saadi, MD, MSHPM
Undocumented patients can be subject to discrimination, reporting, detention, or deportation in violation of the Health Insurance Portability and Accountability Act, so what goes in the record is critical.
AMA J Ethics. 2019;21(1):E8-16. doi:
10.1001/amajethics.2019.8.
Being undocumented is a risk factor for mental illness, and immigration status relates prominently to overall health. That’s enough to consider it protected health information under the Health Insurance Portability and Accountability Act Privacy Rule.
AMA J Ethics. 2019;21(1):E32-37. doi:
10.1001/amajethics.2019.32.