Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018;20(9):E849-856. doi:
10.1001/amajethics.2018.849.
Dr Helen Stanton Chapple joins Ethics Talk to talk about teaching health professions students and trainees about acknowledging and realizing dying in a healthy way.
Research is often conducted without the knowledge or consent of those whose tissues are banked and poses possible harms to social groups if information about a few members is unscientifically applied to all.
Wendy Foth, Carol Waudby, and Murray H. Brilliant, PhD
Certificates of confidentiality, issued by the Department of Health and Human Services, allow researchers to refuse to disclose identifying information about research participants in any civil, legal, or other government proceeding. This level of protection is said to promote enrollment in research studies.
Siddhartha Devarakonda, MD, Ramaswamy Govindan, MD, and Peter S. Hammerman, MD, PhD
While next-generation genome-sequencing technology has great potential to aid cancer research, ethical challenges concerning privacy and confidentiality and the ownership of inventions remain.
The combination of low HIV literacy on the part of older adults and health care professionals’ assumption that they are at low risk leads to insufficiently early testing for HIV and late diagnosis.