We should conduct empirical research to better understand how patients, parents, clinicians, and others grapple with the ethical challenges we confront when caring for children who are dying.
Assigning community based on race suggests that phenotype reveals something consistent about biology that is equal in standing to factors like weight, dietary habits, smoking history, and whether or not you had rheumatic fever as a child.
Forced migration of Pacific Islanders raises ethical issues of health and health care disparities, which are examined in the case of Tuvaluan immigrants.
AMA J Ethics. 2017;19(12):1211-1221. doi:
10.1001/journalofethics.2017.19.12.imhl1-1712.
Hydration at the end of life may be much less beneficial than generally assumed, but the emotional significance of nourishment to caregiving should not be underestimated.
Paula Tironi, JD, LLM and Monique M. Karaganis, MD
While parents often have legal authority to make decisions regarding pediatric palliative care, federal and state statutory and case laws, like CAPTA, impose significant restrictions on that authority.