A portrait illuminates a metaphor for maldistribution of burden of disease, risk exposure, and long-standing inequity in health laid bare to the world during the COVID-19 pandemic.
AMA J Ethics. 2021;23(3):E283-284. doi:
10.1001/amajethics.2021.283.
Framing discussions of ALS around the disease rather than the psychologically complex person with the disease focuses attention on symptoms and imagined outcomes rather than patients’ coping strategies and quality of life.
AMA J Ethics. 2015;17(6):530-534. doi:
10.1001/journalofethics.2015.17.6.nlit2-1506.