Framing discussions of ALS around the disease rather than the psychologically complex person with the disease focuses attention on symptoms and imagined outcomes rather than patients’ coping strategies and quality of life.
AMA J Ethics. 2015;17(6):530-534. doi:
10.1001/journalofethics.2015.17.6.nlit2-1506.
Putting the interest of patients first means attending to what the patient thinks is most important as well as treating medically significant symptoms and conditions.
Putting the interest of patients first means attending to what the patient thinks is most important as well as treating medically significant symptoms and conditions.
Lorraine M. Stone, MD, MSPH and James A. Tulsky, MD
Physicians should develop a specific strategy for talking to relatively healthy patients about their CPR preferences in the event they become seriously ill in the future.
Physicians need to help surrogate decision makers to make treatment and end-of-life decisions for those with severe neurological damage by proving a realistic prognosis and maintain strong lines of communication.