This narrative illuminates need for students and clinicians to be well prepared to face ethically and structurally complex realities of identifying and responding to children.
AMA J Ethics. 2023;25(2):E159-165. doi:
10.1001/amajethics.2023.159.
Kyle B. Brothers, MD, PhD and Esther E. Knapp, MD, MBE
Direct-to-consumer genetic testing requires that physicians share decision making with patients, not order unnecessary tests or interventions, and refer to genetic specialists when necessary.
AMA J Ethics. 2018;20(9):E812-818. doi:
10.1001/amajethics.2018.812.
Physicians are not obligated to offer testing or treatments that are not medically indicated—even if patients demand them. This does not mean, however, that a physician should be dismissive of the patient’s concerns.