Large precision health initiatives like the National Institutes of Health’s All of Us campaign raise important ethical questions about consent, privacy, and inclusivity. This month on Ethics Talk, we explore with Dr Katie Johansen Taber and Ysabel Duron strategies for protecting participants and ensuring that diverse communities are represented.
A lack of consensus guidelines or a belief that current evidence does not support such guidelines might be justified if a clinician expresses a commitment to patient-centered care and shared decision making.
AMA J Ethics. 2018; 20(11):E1007-1016. doi:
10.1001/amajethics.2018.1007.
With a focus on health justice, literature review suggests possible relationships between HPV type and geography and demonstrates that insurance status matters.
AMA J Ethics. 2019; 21(3):E269-272. doi:
10.1001/amajethics.2019.269.
The DSM-5 Task Force’s handling of the ethical controversy over the bereavement exclusion demonstrates the need for more inclusive deliberative processes.
AMA J Ethics. 2017; 19(2):192-198. doi:
10.1001/journalofethics.2017.19.2.pfor2-1702.