When a seriously ill mature minor and his parent disagree about his receiving an experimental intervention, who should decide what treatment he will receive?
When a seriously ill mature minor and his parent disagree about his receiving an experimental intervention, who should decide what treatment he will receive?
Though there are channels through which terminally ill patients can access some experimental drugs that have not yet received FDA approval for marketing to the public, in general those drugs must already be proven safe and effective.
When a seriously ill mature minor and his parent disagree about his receiving an experimental intervention, who should decide what treatment he will receive?
When a severely ill child comes into the emergency room, assent for emergency care is no more required than is parental permission. Conveying the needed care is the top priority.
Jessie Kimbrough-Sugick, MD, MPH, Jessica Holzer, MA, and Eric B. Bass, MD, MPH
Researchers who approach community partners with an agenda already in hand are missing the point of the community-based participatory research enterprise: developing priorities for study together.
By privileging traditional research methods in forms for research protocol approval, IRBs can unknowingly allow community partners to be harmed in CBPR. Changes to the language can help ensure appropriate sensitivity and community involvement.
Lynn Monrouxe, PhD, Malissa Shaw, MSc, PhD, and Charlotte Rees, MEd, PhD
Students’ decision making about ethical dilemmas can be supported via education, faculty development, and structures for reporting professionalism lapses.
AMA J Ethics. 2017;19(6):568-577. doi:
10.1001/journalofethics.2017.19.6.medu1-1706.