The greatest pressure to resuscitate the extremely low-birth-weight infant often results from successful marketing efforts that lead families to expect that their premature infants will be cute and healthy.
Physicians new to a case might object to an established care plan. Practice variation, clinical momentum, and how value is assigned by different parties to acute care and comfort measures can each contribute to conflict in these cases.
AMA J Ethics. 2018;20(8):E699-707. doi:
10.1001/amajethics.2018.699.
Clara C. Hildebrandt, MD and Jonathan M. Marron, MD, MPH
Gene editing with CRISPR/Cas9 raises concerns about equitable access to therapies that could limit research participation by minority group members. These concerns can be addressed through public education, transparency, and stakeholder partnerships.
AMA J Ethics. 2018;20(9):E826-833. doi:
10.1001/amajethics.2018.826.
Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018;20(9):E849-856. doi:
10.1001/amajethics.2018.849.
Cynthia E. Schairer, PhD, Caryn Kseniya Rubanovich, MS, and Cinnamon S. Bloss, PhD
Questions about data privacy need to be addressed when research institutions negotiate with companies developing mobile health applications. Commercial terms of use and data sharing notifications should be reviewed before use in human subject research settings.
AMA J Ethics. 2018;20(9):E864-872. doi:
10.1001/amajethics.2018.864.
Dr Christy Cauley joins Ethics Talk to discuss her article, coauthored with Dr Zara Cooper: "Which Priorities Should Guide Palliative Surgical Research?"
On this episode of Ethics Talk, Editorial Fellow Dr C. Alessandra Colaianni describes the creation of this month’s issue on palliative surgery, and Dr Wynne Morrison explains how to explore palliative surgical goal formation with children and their guardians.
Dr Charles E. Binkley joins Ethics Talk to discuss his article: "How Should Surgeons Communicate About Palliative and Curative Intentions, Purposes, and Outcomes?"
Robert Ledbetter and Dr Buddy Marterre join Ethics Talk to discuss their article: “Where’s the Value in Preoperative Covenants Between Surgeons and Patients?”