By privileging traditional research methods in forms for research protocol approval, IRBs can unknowingly allow community partners to be harmed in CBPR. Changes to the language can help ensure appropriate sensitivity and community involvement.
Whether a physician fancies herself a member of the Green Party or the Tea Party, he or she must obey our government’s rules in her advocacy for that cause and be extremely diligent in those increasingly rare instances when she feels herself compelled not to do so.
Assigning community based on race suggests that phenotype reveals something consistent about biology that is equal in standing to factors like weight, dietary habits, smoking history, and whether or not you had rheumatic fever as a child.
CBP researchers are challenged to think strategically about ways to convey their accomplishments and educate their non-CBPR peers about the nature of their research, processes not required of traditional researchers.
Elizabeth Lee Daugherty, MD, MPH and Douglas B. White, MD, MA
Opportunities to advance scientific knowledge may arise during humanitarian crises, but their presence does not justify suspension of the ethical foundations governing human subjects research.
Forced migration of Pacific Islanders raises ethical issues of health and health care disparities, which are examined in the case of Tuvaluan immigrants.
AMA J Ethics. 2017;19(12):1211-1221. doi:
10.1001/journalofethics.2017.19.12.imhl1-1712.