Holly K. Tabor, PhD and Aaron Goldenberg, PhD, MPH
Rare genetic disease research has something to teach precision medicine about addressing some patients’ limited access to treatment. Health disparities exacerbated by high costs and limited availability of drugs can, perhaps, be mitigated when patient activism accelerates drug development.
AMA J Ethics. 2018; 20(9):E834-840. doi:
10.1001/amajethics.2018.834.
Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018; 20(9):E849-856. doi:
10.1001/amajethics.2018.849.
Emergency medical consultations share with other emergencies the need for prompt action, potentially without information or tools ordinarily available.
AMA J Ethics. 2016; 18(5):479-484. doi:
10.1001/journalofethics.2016.18.5.ecas1-1605.
Does a patient’s request not to have a diagnosis included in her health record undermine a clinician’s capacity to provide clinically and ethically appropriate treatment?
AMA J Ethics. 2016; 18(6):579-586. doi:
10.1001/journalofethics.2016.18.6.ecas2-1606.
Zareen Zaidi, MD, PhD, Daniele Ölveczky, MD, MS, Nicole A. Perez, PhD, Paolo C. Martin, PhD, Andres Fernandez, MD, MSEd, Philicia Duncan, MD, and Hannah L. Anderson, MBA
This article canvasses ways to help trainees cultivate discernment and action in response to inequity.
AMA J Ethics. 2024; 26(1):E12-20. doi:
10.1001/amajethics.2024.12.
This article proposes which instructional design priorities should guide development of inclusive, accessible online curricula and learning experiences.
AMA J Ethics. 2024; 26(1):E26-35. doi:
10.1001/amajethics.2024.26.
Whitney V. Cabey, MD, MSHP, MA, Nicolle K. Strand, JD, MBE, MPH, and Erin Marshall, MSS, LSW
An emerging and important goal of health professions training is to develop a workforce equipped to address structural determinants of patients’ health.
AMA J Ethics. 2024; 26(1):E48-53. doi:
10.1001/amajethics.2024.48.
Dr David Marcus joins Ethics Talk to discuss his article: “When, If Ever, Is It Appropriate to Regard a Patient as ‘Too Medically Complex’ for One Inpatient Service, But Not Another?”