Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018;20(9):E849-856. doi:
10.1001/amajethics.2018.849.
Cynthia E. Schairer, PhD, Caryn Kseniya Rubanovich, MS, and Cinnamon S. Bloss, PhD
Questions about data privacy need to be addressed when research institutions negotiate with companies developing mobile health applications. Commercial terms of use and data sharing notifications should be reviewed before use in human subject research settings.
AMA J Ethics. 2018;20(9):E864-872. doi:
10.1001/amajethics.2018.864.
Drs Michael Young, Robert Regenhardt, and Leonard Sokol join Ethics Talk to discuss their article, coauthored with Dr Thabele Leslie-Mazwi: "When Should Neuroendovascular Care for Patients With Acute Stroke Be Palliative?"
A patient’s transition from “living” to “dying” is not socially marked in the same way death is marked, and this is both clinically and ethically relevant.
AMA J Ethics. 2020;22(12):E1062-1066. doi:
10.1001/amajethics.2020.1062.