Presymptomatic genetic testing for neurodegenerative diseases can help patients make effective treatment decisions, but the medical profession needs to ensure that the increasing use of the tests is done responsibly.
A recent journal article calls for a public policy that would require physician-researchers to demonstrate the absence of undue influence or coercion on informed consent.
Prashasti Bhatnagar joins Ethics Talk to discuss her article, coauthored with Dr Deborah F. Perry and Margaret E. Greer: “How Should We Measure Effectiveness of Medical-Legal Partnerships?”