Mandatory genetic testing of health care professionals could help structure health care organizations’ responses to a pandemic. Patients and more susceptible employees can benefit, and these benefits must be weighed against concerns about fairness, autonomy, genetic privacy, and potential loss of employment opportunities.
AMA J Ethics. 2018;20(9):E819-825. doi:
10.1001/amajethics.2018.819.
Holly K. Tabor, PhD and Aaron Goldenberg, PhD, MPH
Rare genetic disease research has something to teach precision medicine about addressing some patients’ limited access to treatment. Health disparities exacerbated by high costs and limited availability of drugs can, perhaps, be mitigated when patient activism accelerates drug development.
AMA J Ethics. 2018;20(9):E834-840. doi:
10.1001/amajethics.2018.834.
Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018;20(9):E849-856. doi:
10.1001/amajethics.2018.849.
Cynthia E. Schairer, PhD, Caryn Kseniya Rubanovich, MS, and Cinnamon S. Bloss, PhD
Questions about data privacy need to be addressed when research institutions negotiate with companies developing mobile health applications. Commercial terms of use and data sharing notifications should be reviewed before use in human subject research settings.
AMA J Ethics. 2018;20(9):E864-872. doi:
10.1001/amajethics.2018.864.
Dr Lisa Fuller joins Ethics Talk to discuss her article: “How Should Organizations and Clinicians Help Marginalized Patients Manage Loneliness as a Harm of Climate Change?”
Joelle I. Rosser, MD, MS, Orion X. Lavery, Rebecca C. Christofferson, PhD, MApSt, Juma Nasoro, Francis M. Mutuku, PhD, and A. Desiree LaBeaud, MD, MS
Organizations’ architecture and communities’ waste stream designs situate how well industrial hygiene practices support or undermine individuals’ and communities’ pathogenic vulnerability.
AMA J Ethics. 2024;26(2):E132-141. doi:
10.1001/amajethics.2024.132.
High reliability organizations operate in complex, high-hazard domains for extended periods without serious accidents, catastrophic failures, or ecological health threats.
AMA J Ethics. 2024;26(2):E171-178. doi:
10.1001/amajethics.2024.171.
Dr Larry R. Churchill joins Ethics Talk to discuss his article, coauthored with Dr Gail E. Henderson and Professor Nancy M.P. King: “Why Climate Literacy Is Health Literacy.”
Lloyd Duplechan joins Ethics Talk to discuss his article: "How High Reliability Can Facilitate Clinical, Organizational, and Public Health Responses to Global Ecological Health Risks.”