Ashok, a Nepali man with neurofibromatosis, has undergone 3 surgeries to remove facially disfiguring tumors. His portrait is one of over 200 exhibited by this artist-researcher and mother.
AMA J Ethics. 2020;22(6):E513-524. doi:
10.1001/amajethics.2020.513.
Targeted dosing to treat pediatric inflammatory bowel disease is challenging because dosing guidelines are based on data gathered from adult subjects of clinical trials. Patients’ families and health care organizations also incur high costs and must try to balance potential benefits against risks of ongoing monitoring.
AMA J Ethics. 2018;20(9):E841-848. doi:
10.1001/amajethics.2018.841.
A judicious approach to autism would be to replace a “disability” or “illness” paradigm with a “diversity” perspective that takes into account both strengths and weaknesses and the idea that variation can be positive in and of itself.
AMA J Ethics. 2015;17(4):348-352. doi:
10.1001/journalofethics.2015.17.4.msoc1-1504.