Rebekah Davis Reed, PhD, JD and Erik L. Antonsen, PhD, MD
Though the National Aeronautics and Space Administration’s collection of disaggregated genetic data for occupational surveillance and research raises numerous privacy concerns, the Genetic Information Nondiscrimination Act of 2008 allows genetic information to be used to develop personal pharmaceuticals.
AMA J Ethics. 2018;20(9):E849-856. doi:
10.1001/amajethics.2018.849.
Emily L. Evans, PhD, MPH and Danielle Whicher, PhD, MHS
Clinical decision support systems leverage data generated in the course of standard clinical care to improve clinical practice. They need to ensure privacy and quality of patients’ data, but must also allow queries of electronic health records.
AMA J Ethics. 2018;20(9):E857-863. doi:
10.1001/amajethics.2018.857.
After years of funding disease-specific treatment, donation trends have shifted to support broader health systems infrastructure development. A remaining challenge is how to sustain antiretroviral therapy (ART) for patients in resource-poor regions.
AMA J Ethics. 2016;18(7):681-690. doi:
10.1001/journalofethics.2016.18.7.ecas3-1607.
Dr Christy Cauley joins Ethics Talk to discuss her article, coauthored with Dr Zara Cooper: "Which Priorities Should Guide Palliative Surgical Research?"
On this episode of Ethics Talk, Editorial Fellow Dr C. Alessandra Colaianni describes the creation of this month’s issue on palliative surgery, and Dr Wynne Morrison explains how to explore palliative surgical goal formation with children and their guardians.
Dr Charles E. Binkley joins Ethics Talk to discuss his article: "How Should Surgeons Communicate About Palliative and Curative Intentions, Purposes, and Outcomes?"
Robert Ledbetter and Dr Buddy Marterre join Ethics Talk to discuss their article: “Where’s the Value in Preoperative Covenants Between Surgeons and Patients?”