Framing discussions of ALS around the disease rather than the psychologically complex person with the disease focuses attention on symptoms and imagined outcomes rather than patients’ coping strategies and quality of life.
AMA J Ethics. 2015;17(6):530-534. doi:
10.1001/journalofethics.2015.17.6.nlit2-1506.
The 2013 BRAIN Research Initiative calls for the integration of ethics into medical education and all levels of research, from hypothesis generation to evaluation, which promises to provide an ethical foundation for all future biomedical research.